I’m Aware That I’m Rare: Jennifer Stone (338)

The phaware® interview

Jennifer Stone is a school teacher from the Los Angeles Area. She was diagnosed with PAH in July 2011. In this episode, she discusses how she is fighting this disease through clinical trials, staying positive, and having a strong support system.

I am Jennifer Stone. I am living in the Los Angeles area. I was diagnosed [with pulmonary hypertension] in 2011, and I actually started in a clinical trial right from diagnosis, so I did that for a little while until I had some side effect issues with one of the medications.

I was looking for support group help, kind of understanding what I was going through, and the L.A. area is so large that our main support group was pretty far away. So, I tried to do some organizing in the valley a little bit, a little closer to home. It’s been hit and miss, and I just kind of try and stay active in the community with information and learning new things. My number one goal is really to kind of stay off of the pump, which I have successfully been able to do for eight and a half years.