I’m Aware That I’m Rare: Jane Price (327)

The phaware® interview

Jane Price’s daughter, Connie was diagnosed with pulmonary hypertension at age 3. At age 4, she was the 2nd child (the first girl) to ever have the Potts Shunt operation in the UK. In this episode, Jane shares Connie’s 2 year post surgery story for everything to become more stable.

Hi, my name’s Jane Price. I’m calling from England, Essex. My daughter, Connie, has pulmonary hypertension. She is six. She was diagnosed when she was three, so we’ve been in this world for about three years now.

She is the middle child. At the time, we only had my older daughter and her, and she was quite late at doing the things that her sister had done in terms of walking, moving around, that kind of thing. I’m an educator, I’m an assistant head teacher, so I’m quite au fait with what children do and their steps and their processes. So, I wasn’t overly worried, each child developing at their own pace, that kind of thing. But when she did start walking at around 15, 16 months, she just didn’t want to do it. That’s the only way I can describe it. We’d be on…