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I’m Aware That I’m Rare: Iain Hess (300)

phaware global association®
10 min readDec 1, 2019

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The phaware® interview

In our 300th episode, Iain Hess discusses his lifesaving double-lung transplant he received two years ago on January 17, 2017. Iain is a former pulmonary hypertension patient from Colorado who was diagnosed at age 5.

My name is Ian Hess, and I’m here to share my story.

One year ago, I was standing on top of one of Colorado’s 14,000-foot peaks. It was a difficult climb to the top, but overall it was one of the most rewarding experiences of my life. It was something that I’d wanted to do for a long time, but never had the opportunity to, because for 12 years I had lived with pulmonary hypertension [PH]. Doing something like this was just simply impossible. But thanks to my physicians, nurses, parents, people at the pharmaceutical companies, friends, everyone, I was able to do such a thing.

Going back to 2004, two weeks before a planned family trip to India, I was diagnosed with pulmonary hypertension. At the time, I couldn’t really comprehend what my diagnosis meant, but the doctors essentially told my parents that…

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phaware global association®
phaware global association®

Written by phaware global association®

Are You #phaware? Pulmonary hypertension (PH) is a rare, life-threatening disease affecting the arteries of the lungs. www.phaware.global

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