The phaware® interview In this episode, pulmonary hypertension patient, Stacey McCarthy discusses her 13 year journey with PH and her struggles as a single mom. …

The phaware® interview In this episode, attorney Katie Sample discusses losing her husband to complications following a bone-marrow transplant. Two years later, while still in mourning, this single-mother from Long Beach, California was diagnosed with Ideopathic Pulmonary Hypertension. My name is Katie Sample. I’m 39 years old. I live…

The phaware® interview Former pulmonary hypertension patient, Evelyn Melendez discusses her recent lung transplant surgery and her road to recovery. My name is Evelyn Melendez, and I’m from Bethlehem, Pennsylvania. I had pulmonary hypertension for 19 years until May 12th of 2022 when I got the call, and I…

The phaware® interview In this episode, pulmonary hypertension patient and @PHatStanford #RaceAgainstPH 2022 Pediatric PH Courage Award recipient, Paige Zils (10) and her mother Lindsey Doolan, discuss Paige’s PH diagnosis and the importance of a great care team. Don’t miss the 22nd Annual Race Against PH at November 22 hosted…

The phaware® interview In this episode, pulmonary hypertension patient and Stanford’s Race Against PH 2022 Adult PH Courage Award recipient, Yolanda Villalon, discusses her devastating diagnosis and the impact on finding the right support group. Don’t miss the 22nd Annual Race Against PH at November 22 hosted by the Vera…

The phaware® interview In this episode, pulmonary hypertension patient and Stanford’s Race Against PH 2021 Adult PH Courage Award recipient, Graydon Cawein, discusses his long road to his rare disease diagnosis, survivor’s guilt, and the importance of finding an expert treatment center. Don’t miss the 22nd Annual Race Against PH…

The phaware® interview Roslyn Rivera, RN, BSN is the Fetal and Pediatric Cardiology Outpatient Nurse Coordinator at the UCLA Children’s Heart Center. Since 2013, Roslyn has volunteered with Camp del Corazon, a nonprofit organization offering year-round activities for children and young adults with CHD. …

The phaware® interview CTEPH patient, Karri Reynolds spent years bouncing from specialist to specialist due to her failing health. In this episode, she details how self-advocating led and a desperate facebook post led to her being diagnosed at age 40 (by a pediatric cardiologist)! My name is Karri Reynolds…

The phaware® interview In this episode, board certified pediatrician and mother to a young child with idiopathic PAH, Chandani DeZure, MD, shares advice & tips for parents navigating this rare diagnosis and offers a unique perspective from both the patient/caregiver and physician side. My name is Chandani DeZure. I’m…